Hello! I’m Hannah.
I’m 23 years old and I have a rare skin condition called hydroa vacciaforme.
Hydroa vacciaforme is a photosensitive condition and is triggered by the UVA and UVA rays of the sun. It makes my skin blister and boil, leaving behind scars and thin areas of skin.
There is no cure for my condition and no treatments; it’s so rare that there are only 6 people in the UK that have it, myself being the worst one and also the patient that has had it the longest!
I’ve had this condition for 17 years and in that time, unfortunately, I have found nothing that helps my skin long term. However UV sun protection clothing is helpful to protect my head and my hands!
Thank you Hannah for helping raise awareness for skin conditions by sharing your story with us and our Solbari Community.
The Solbari Team
Below are 7 areas which people often forget to protect from the sun and can cause serious sunburn and skin damage...
1. Ears: Have you ever had blistering, peeling ears? Well, it's pretty painful and not a good look. Don't forget to apply sunscreen on your ears, the upper area and behind them.
2. Eyelids: It's a very delicate area, where the skin is sensitive and thin. Category 3 sunglasses will help protect the eyes as well as a wide brim sun hat.
Click here to read more...