My name is Madeline and I am 25 years old.
I live with a condition called erythropoietic protoporphyria or EPP. EPP is a rare metabolic disorder that impacts my production of heme.
EPP has affected my life since I was an infant, however, I was not diagnosed until I was 19. Basically, when I am in sunlight (direct or reflected) for varying amounts of time (can be as little as five minutes) I will develop an excruciating burning pain, swelling, redness or blistering on the skin that is exposed to the sun.
This pain can last days and causes extreme sensitivity to temperature and touch. During these times, I am unable to sleep, participate in daily living or find any relief from the pain. The parts of my body that are affected most are my hands, feet and arms. If I have a severe reaction, I am left with scaring that may or may not fade over the years.
Being a young person living in coastal Australia, having EPP makes it very difficult to enjoy and participate in outdoor activities such as going to the beach, playing sport, going on holidays and even driving. Activities that most young people take for granted and have been able to experience throughout their life. However, I have discovered Solbari!
Since using Solbari products I am now able to enjoy being outside. If my skin is covered using Solbari products I do not have these severe episodes. Being a young woman, I love that Solbari looks like regular fashion. My confidence to cover up and embrace my condition has increased and now summer is even my favourite season! Solbari has allowed me to prevent flare-ups rather than treat them.
I am glad to share this with you as your products have truly affected the way I live my life. Thank you.
Thank you Madeleine for helping raise awareness for skin conditions by sharing your story with us and our Solbari Community.
The Solbari Team
Below are 7 areas which people often forget to protect from the sun and can cause serious sunburn and skin damage...
1. Ears: Have you ever had blistering, peeling ears? Well, it's pretty painful and not a good look. Don't forget to apply sunscreen on your ears, the upper area and behind them.
2. Eyelids: It's a very delicate area, where the skin is sensitive and thin. Category 3 sunglasses will help protect the eyes as well as a wide brim sun hat.
Click here to read more...